Bpan Warriors

PARENT LED | PATIENT INSPIRED | COMMUNITY SUPPORTED | RARE DISEASE ORGANIZATION BPAN WARRIORS is a US based 501(c)(3) non-profit, singularly focused on bringing life-saving treatment to patients living with BPAN, a rare, devastating, life-limiting, neurodegenerative disease - which presently has no treatment and no cure. We are dedicated to transparency, accountability and global collaboration. Our newly launched BPAN R.A.C.E. (research and collaborative exchange), a network of scientists, researchers, patients and industry stakeholders, will help to streamline and accelerate the path to a treatment for BPAN.