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CHILD LIFE SOCIETY INC

Mission Statement

Child Life Society was created to help make life with cystic fibrosis (CF) as normal and enjoyable as possible. CF is a degenerative genetic disease and, as of now, remains incurable.


About Us

Individuals with CF suffer lifelong breathing difficulties due to the constant heavy buildup of thick mucus in their lungs, and are dangerously prone to life-threatening infections in their lungs.

Days and nights are filled with wheezing, coughing, fatigue, and the constant burden of doctor appointments, respiration therapy, medication, and frequent hospitalization.

Child Life Society provides desperately needed medical equipment, vitamins and food supplements, home care assistance and emotional support. Child Life Society also subsidizes therapeutic respite trips for CF patients to Key West, FL, where the pristine and salty aquatic climate helps ease breathing difficulties, rejuvenate and significantly reduce future hospitalization.

Where We Work

What We Do

Health
Health - Learn more

Cystic fibrosis (CF) affects approximately 30,000 children and adults in the United States, and occurs in approximately one out of every 3,900 births. Over 10 million Americans are unknowing, symptomless carriers of the defective CF gene, which comes in over 1,000 mutations. When two carriers conceive, there is a 25% chance that the child will have CF, a 50% chance that the child will be a CF gene carrier. About 1,000 new cases of CF are diagnosed each year. Over 80% of patients are diagnosed by age three, but nearly 10% initially have more moderate symptoms and are only diagnosed at age 18 or older. Additional information can be found at the Cystic Fibrosis Foundation website, www.cff.org.

Locations Served
United States of America

Reviews • Write Review

lisa.yourman
This organization is located in Brooklyn, New York that is geared for Jewish Cystic Fibrosis Trust families. They have been doing lots of fundraising in the past 15 years or so, yet they don't deliver to the families in need. I looked up some of their tax returns and it was quite shocking. Between 2012 and 2015 they have raised between $300,000 and $550,000 each year, while only giving for the cause 15.75% at most. In 2013, they only gave 7.37%! to the CF families. These numbers are based on the 990 tax returns that are publicly available online. In 2013 they raised $347,464.00 and granted the CF families with a measly $25,592.00 (which is 7.37%). They claim to help around 100 CF families, you're welcome to do the math how much 'help' each family may have gotten for the year... They do have two homes for respite care in Florida. But they basically use that for their PR campaign for fundraising tactics The organizations policy is they will only send you money if you send them first a testimonial stating how wonderful this organization is.... they tell the families this is required by the IRS.

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