Child Life Society was created to help make life with cystic fibrosis (CF) as normal and enjoyable as possible. CF is a degenerative genetic disease and, as of now, remains incurable.
Individuals with CF suffer lifelong breathing difficulties due to the constant heavy buildup of thick mucus in their lungs, and are dangerously prone to life-threatening infections in their lungs.
Days and nights are filled with wheezing, coughing, fatigue, and the constant burden of doctor appointments, respiration therapy, medication, and frequent hospitalization.
Child Life Society provides desperately needed medical equipment, vitamins and food supplements, home care assistance and emotional support. Child Life Society also subsidizes therapeutic respite trips for CF patients to Key West, FL, where the pristine and salty aquatic climate helps ease breathing difficulties, rejuvenate and significantly reduce future hospitalization.
Where We Work
What We Do
Cystic fibrosis (CF) affects approximately 30,000 children and adults in the United States, and occurs in approximately one out of every 3,900 births. Over 10 million Americans are unknowing, symptomless carriers of the defective CF gene, which comes in over 1,000 mutations. When two carriers conceive, there is a 25% chance that the child will have CF, a 50% chance that the child will be a CF gene carrier. About 1,000 new cases of CF are diagnosed each year. Over 80% of patients are diagnosed by age three, but nearly 10% initially have more moderate symptoms and are only diagnosed at age 18 or older. Additional information can be found at the Cystic Fibrosis Foundation website, www.cff.org.