Rare New England Inc

RNE's mission is to bring together New England patients, families and providers touched by rare and complex disorders. We offer educational opportunities, create awareness of available resources, and build foundations for support to improve patient quality of life. RNE offers patient and family support, highlights our region's medical and community resources, connects patients to appropriate national support and advocacy groups, and creates educational opportunities for New England patients and providers to advance care and quality of life for rare disorder patients and their families. RNE strives to increase awareness that patients with rare and complex disorders live, work, attend school, and participate in communities across New England. Individually, we may be “rare,” but together we are a vibrant, strong community with much to offer! RNE provides education about issues affecting rare and complex patients and their families to the medical community, the education system, regional legislators, workplaces, and others. We address topics such as complex care coordination, ADA and IEP accommodations, medical insurance problems, and more. ??